There is a word for losing both your parents. A title for losing your husband or wife. You can use a simple word: Orphan, Widow, Widower,...

The word hospice elicits feelings of fear for most people, and 'Children's Hospice' is a coupling of words bound to make anyone feel a...

It is summer! Having spent a large portion of winter in hospital, and the rest of it in semi-isolation at home, we decided that come May,...

'Let me know if there's anything I can do'. I've said it in the past, and we've heard variations of it many times over the past couple of...

Turning one!  A lot of people get excited about their baby’s first birthday, it marks the end of what has usually been a life changing...

As I've mentioned, we gave Elodie a middle name that we associate with stars. The night after her diagnosis, she had several major...

Jealousy isn't a nice feeling, and it's not something I have usually felt... but it pops up more often these days than I'd like to admit....

I thought I would start a blog about our amazing daughter Elodie who has Edward's Syndrome (photos below), because when we got our...